On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.
Thursday, May 28, 2009
Quick Morning Update
Sophie had an uneventful night. Sleeping and some morphine has become her routine. No seizure clusters. Some swelling has arrived (her left eye doesn't open) but her face still looks great (good genes from her mama).