Monday, May 25, 2009
On our way...
We left at 6:45am for Detroit. It is about an 8 hour drive. Not too bad with 3 adults...Brandon, Jason (Brandon's brother) and me. Sophie is INCREDIBLE in the car. She is easily entertainable. Sophie was still sleeping when we were getting ready to leave. She was up late last night so she would have probably slept in until at least 8:30am. So Brandon tried to put her in her carseat without waking her up. No such luck. But she was happy enough and did not mind getting in the carseat. So we all piled in but before we even made it out of the neighborhood we had to pull over. Sophie was having seizures that were making her quite upset and she wanted out of her carseat. Broke my heart...always does. So I held her and comforted her until they subsided. Her morning seizures are the worst...almost always makes her upset. This whole scenario actually gave me a sense of peace with the surgery. I know we are doing the right thing. With each seizure I see since the decision was made, the more at peace I am with the decision.
We drove 4.5 hours before stopping to eat lunch. Sophie did great. She was a little antsy towards the end but no crying and no screaming. Currently, we have about 30 minutes left and she is still doing great. **I am updating through Jason's wireless laptop.**
Tomorrow morning is Part 1 of the 2 part surgery. We are to be at the hospital by 9am and surgery is scheduled at 10:30am. Before the surgery begins, we will meet with Dr. Sood (neurosurgeon). Usually, you would meet him the day before but since today is a holiday, we will meet him right before surgery. Normally, I would be going out of my mind not meeting with the neurosurgeon sooner than that but I really don't have many questions. Meghan (Our Jackers) has really put my mind at ease. Her son went through this exact same process last September. She has been incredibly supportive and has explained everything to me in such great detail. Her blog is also a wealth of information.
Well, it is around 6pm and we are pulling up to the Ronald McDonald House. I will update more later.