We left at 6:45am for Detroit. It is about an 8 hour drive. Not too bad with 3 adults...Brandon, Jason (Brandon's brother) and me. Sophie is INCREDIBLE in the car. She is easily entertainable. Sophie was still sleeping when we were getting ready to leave. She was up late last night so she would have probably slept in until at least 8:30am. So Brandon tried to put her in her carseat without waking her up. No such luck. But she was happy enough and did not mind getting in the carseat. So we all piled in but before we even made it out of the neighborhood we had to pull over. Sophie was having seizures that were making her quite upset and she wanted out of her carseat. Broke my heart...always does. So I held her and comforted her until they subsided. Her morning seizures are the worst...almost always makes her upset. This whole scenario actually gave me a sense of peace with the surgery. I know we are doing the right thing. With each seizure I see since the decision was made, the more at peace I am with the decision.
We drove 4.5 hours before stopping to eat lunch. Sophie did great. She was a little antsy towards the end but no crying and no screaming. Currently, we have about 30 minutes left and she is still doing great. **I am updating through Jason's wireless laptop.**
Tomorrow morning is Part 1 of the 2 part surgery. We are to be at the hospital by 9am and surgery is scheduled at 10:30am. Before the surgery begins, we will meet with Dr. Sood (neurosurgeon). Usually, you would meet him the day before but since today is a holiday, we will meet him right before surgery. Normally, I would be going out of my mind not meeting with the neurosurgeon sooner than that but I really don't have many questions. Meghan (Our Jackers) has really put my mind at ease. Her son went through this exact same process last September. She has been incredibly supportive and has explained everything to me in such great detail. Her blog is also a wealth of information.
Well, it is around 6pm and we are pulling up to the Ronald McDonald House. I will update more later.
8 comments:
You guys are all in my thoughts. I'M HOPING FOR ALL THE BEST!!!
I will be waiting on wonderful news tomorrow afternoon....I can't imagine being able to look at your little baby girl and have the REAL HOPE that the seizures will be no more!!!
My prayers are with you all...
Cyndi
Hi guys & girls! Can't wait to see you all when we come in June!!! I bet Julia & Elsa will have a blast together! And you know how Ryan & Sara love to dote on Sophie! Rub that baby belly for me - Ryan is excited to have another boy cousin - seems he is surounded by girls nost of the time :~) Make sure Brandon or Jason get you a bunch of those celebrity trash magazines - best way to pass the time, ya know? We are thinking of you all -- especially that little brown haired spunky 3 year old!!! (((HUGS)))
Laura, Matt, Sara, Ryan & Julia
So many of us thinking of you, more than you can know. Tomorrow is a day we meet with anticipation and hope. With best wishes, CB
Glad you all made it safely and in good time! I'm getting my time zone down for tomorrow, since you will be an hour ahead in Detroit. Try to get a good nights sleep tonight! It will be a long week, but so worth it. Sophie is in incredible hands and we'll be praying!!!!
Thinking of you guys and loving you guys and hoping that this surgery goes amazingly!
I'm glad to hear that you had a smooth car trip to Detroit. You're off to a good start! I wish you, Sophie and Brandon the best tomorrow. You both are incredible parents and strong individuals to go through this journey with Sophie. And Sophie, what a trooper she is! I love you guys and will be praying my heart out for a successful surgery and no more seizures! Please let me know if there is anything I can do to help. Take care!
Love,
Erin
(((((((((((((HUGS))))))))))))))
...danielle
Post a Comment