I got "THE" call from Ruth today. There is an opening on Tuesday, May 26th and she wanted to know if we wanted it. Of course, she left the message on my cell phone and I didn't get the message until 7pm tonight. Brandon was out playing golf. I was home alone with the girls. I couldn't breathe. I felt nauseous. I want this. I want this so bad. But I wrote it off...that is us getting a cancellation. I am 34 weeks pregnant. I am not suppose to travel after 36 weeks. So if we didn't get the call now then we had to wait until after the baby was born.
I was in planning mode. Not trying to think about the actual surgery. Just trying to get all the details worked out...who was going to watch Elsa and the new baby, making housing accommodations in Detroit, trying to get a neuropsych evaluation appointment (which took me almost 3 weeks to get and I got the call this morning with the appointment date of June 1st), etc.
So here I am now. In just a mere 5 days, Sophie will be scheduled to have Part 1 of the surgery. All my prior planning is out the door. Useless. Now I need to focus on both planning and surgery. I am in shock. I can't believe it. I am scared!!! Scared is an understatement!!!
But I am happy?!?! Can't think of quite the right word to explain how I feel. I knew Sophie was going to have surgery. So better now than later. Of course, I wish she didn't. I wish her seizures would have just stopped on their own. But I am hopeful that surgery is the answer. But it is hard to be hopeful when so many things have failed in the past. But I can't think about that. I can't think about the "what ifs". I HAVE to put all my hope into this. That by the end of next week I will be able to say...I HAVE NOT SEEN ANY SEIZURES TODAY!!!
I was in planning mode. Not trying to think about the actual surgery. Just trying to get all the details worked out...who was going to watch Elsa and the new baby, making housing accommodations in Detroit, trying to get a neuropsych evaluation appointment (which took me almost 3 weeks to get and I got the call this morning with the appointment date of June 1st), etc.
So here I am now. In just a mere 5 days, Sophie will be scheduled to have Part 1 of the surgery. All my prior planning is out the door. Useless. Now I need to focus on both planning and surgery. I am in shock. I can't believe it. I am scared!!! Scared is an understatement!!!
But I am happy?!?! Can't think of quite the right word to explain how I feel. I knew Sophie was going to have surgery. So better now than later. Of course, I wish she didn't. I wish her seizures would have just stopped on their own. But I am hopeful that surgery is the answer. But it is hard to be hopeful when so many things have failed in the past. But I can't think about that. I can't think about the "what ifs". I HAVE to put all my hope into this. That by the end of next week I will be able to say...I HAVE NOT SEEN ANY SEIZURES TODAY!!!
17 comments:
Oh my gosh Elaine!!! I will be thinking of you every day....I can't even begin to imagine what you must be thinking and feeling. Hoping and praying that this surgery will be the answer for Sophie! Hugs,
Jennifer
WOW. I will be thinkinf of you all as you do your last minute planning and preparations over the weekend. Sophie is in the best hands. I'll be praying.
If there is anything, ANYTHING we can do besides pray and keep our fingers crossed let us know. I'm so excited for you guys. To think in just a matter of days Sophie could have control of her seizures!!! Such a struggle but I know this 4th of July we can celebrate the freedom this will give Sophie. A real Independence Day!!!
Love to all. See you soon.
Aunt Barb
Oh sweetie...
...danielle
That's just about the greatest news I've heard in a week of bad. WONDERFUL. The 24th is my Mom's birthday. Good day. You will all be in my thoughts.
I am so hopeful that this is the answer for Sophie and that this WILL be her last week with seizures!
Stay strong and positive...
(((((HUGS)))))
Holli
oh WOW!! We had just talked about this!! How very awesome!!
hugs
Lisa
That is overwhelming. My offer stands, if there is ANYTHING I can do...
CB
Elaine - It's pretty crazy how Ruth calls on the last week that you could go to Detroit before the baby. It seems like everything is falling into place. We will be thinking and praying for you all constantly. Let me know if you need anything at all! Lots of prayers from Texas!
Oh, Elaine!!!!!! This: That by the end of next week I will be able to say...I HAVE NOT SEEN ANY SEIZURES TODAY!!! absolutely Gives. Me. Chills.
love, love, love to you guys.
I can only imagine the rollercoaster of emotions! I will pray SO hard for Sophie and the whole family....And please do try and take good care of yourself....I know this will be hard on you, but you have this new little one that will be depending on you! I hope there will be a free minute or two each day so that you can update all of us...
Since Colby is notreally a surgical candidate, I have not had to face a decision like this...But just imagine! God willing, you will have a brand new little girl on your hands very soon!!! He will be guiding the surgeons...
God Bless all of you!!
~Cyndi
I can imagine that you are having a million emotions and thoughts running rampant in your head right now. As hard as it is right now, try to "be where you are"...focus on what you are doing in the moment.
Just know that your Sweet Sophie will be in good hands...she is always in God's hands and he will take care of her, and carry you all through these times. Many prayers are coming your way.
I really hope this will be the answer and stop the seizures. Wishing you lots of prayers and good wishes during the surgery.
Hi Elaine,
I talked to Jason a week ago or so and he told me you were on "call". I check in on your blog from time to time and I see you have the date. We are so hopeful for you all. You are in our thoughts.
Love,
Jeff, Carrie, Ellie and Emma
I'm new to your blog and wanted to say hello. I, too, have a Sophie with a seizure disorder although she's fourteen years old now. I will think good thoughts about the surgery -- and feel free to stop by my blog as well!
Elaine -I was just stopping by to check for updates...not sure if you all took the cancellation and are preparing for surgery tomorrow..or if you will be checking in. But, I wanted to let you know we are constantly thinking of your family and praying that this is it!
Hoping and praying for wonderful news soon!
Big hugs and prayers,
Holli
Read Danielle's post about Sophie and wanted to come and let you know that I'll be saying prayers for you all. Good luck and God Bless.
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