On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.
Monday, June 01, 2009
Yesterday's pictures...
Sophie loves to play with her babydoll's eyelashes.
Those photos are very touching and heart warming. It may be difficult for her to express, but I think she looks content in Elaine's arms. Best to be lethargic now and rest well.
And the picture with Elaine's hair! Sophie so loves hair. Instead of shaving thier heads, Brandon and Jason should let their hair grow out and grow beards so Sophie can hold it as soon as she feels like it. I'd be glad to have her grab mine anytime, but I think she likes to keep it in the family.
We're all hoping every day will be better and better and the family will be home soon. Best wishes continue. CB
Hello from Olathe :) We have been checking in every day & are so happy Sophie has not had any seizures!!! Elaine you are such an AWESOME momma!! Lucky girls & boy ;~) Hello to Brandon & Debbie, too :) Can't wait to see you Sweet Sophie! Love ya! Laura, Matt, Sara, Ryan & Julia
Elaine & Brandon, I was out of town for the weekend so I am just now getting my daily dose of Sophie! You are writing all of the same things my brother and sister-in-law wrote. Gabe had the same swelling too! You will be amazed at her recovery and I'm sending nothing but positive vibes your way! All the best.... Michael
It is scary, but a GOOD scary, to see these pictures....Having not been through anything like this, I can't even BEGIN to imagine what it is like....But boy, counting the seizure-free days? WOW!!! How miraculous does THAT feel?
It really does sound like a "textbook case"...She is doing what she is SUPPOSED to be doing!!! Praise the Lord!!!
Y'all take good care and try and rest as much as you can...It must be difficult...But you can see to the other side now!!!
10 comments:
So sweet. Hope all is going well.
What a sweet heart!
Sweet has already been said...twice. But that is exactly what I thought when I saw these photos.
Sweet baby girl.
Nice...
Those photos are very touching and heart warming. It may be difficult for her to express, but I think she looks content in Elaine's arms. Best to be lethargic now and rest well.
And the picture with Elaine's hair! Sophie so loves hair. Instead of shaving thier heads, Brandon and Jason should let their hair grow out and grow beards so Sophie can hold it as soon as she feels like it. I'd be glad to have her grab mine anytime, but I think she likes to keep it in the family.
We're all hoping every day will be better and better and the family will be home soon. Best wishes continue.
CB
It's so good to see Sophie hair grabbing and thumb sucking!! Rest well and get your strength back soon, little one.
Love,
Aunt Barb
Hello from Olathe :) We have been checking in every day & are so happy Sophie has not had any seizures!!! Elaine you are such an AWESOME momma!! Lucky girls & boy ;~) Hello to Brandon & Debbie, too :) Can't wait to see you Sweet Sophie!
Love ya!
Laura, Matt, Sara, Ryan & Julia
Elaine & Brandon,
I was out of town for the weekend so I am just now getting my daily dose of Sophie! You are writing all of the same things my brother and sister-in-law wrote. Gabe had the same swelling too! You will be amazed at her recovery and I'm sending nothing but positive vibes your way! All the best....
Michael
It is scary, but a GOOD scary, to see these pictures....Having not been through anything like this, I can't even BEGIN to imagine what it is like....But boy, counting the seizure-free days? WOW!!! How miraculous does THAT feel?
It really does sound like a "textbook case"...She is doing what she is SUPPOSED to be doing!!! Praise the Lord!!!
Y'all take good care and try and rest as much as you can...It must be difficult...But you can see to the other side now!!!
Precious, precious...
Thanks for sharing!
Cyndi
We can't imagine how amazing it must have felt to finally hold your little girl after so many days! Keep the good news coming!
The Lalumondiere's
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