On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.
Tuesday, June 02, 2009
Different point of view...
I guess Brandon and I saw 2 different Sophie's yesterday. I was surprised but happy to read about the things she did yesterday that I didn't know of. Amazed really.
Brandon captured some of the things he talked about on video...
7 comments:
Anonymous
said...
I think I look at Sophie's blog everytime I walk by the computer. That video absolutely thrilled me to. You can tell that Sophie is all there except for those nasty seizures. I have said all along she is a tough little kid. I know it is hard to see her in pain and so weak but give her time...she is a fighter. I can't imagine how you are dealing with all of this and I am not going to try and act like I understand. I thought autism was a rough road...I can't even imagine. She was given to you two for a reason and you are doing a wonderful job. Keep up the good work. I love you Sophie!!!
Thanks for taking the video Brandon! It brings us closer to her to see it and the boys love checking in on her all the time. Praying for a better day! Although she seems to be doing amazingly well with all she's been through.
She looks great. It made my day to see her looking at her book and making the frog jump. I love the hair. Keep up the good work Sophie. Come home soon.
7 comments:
I think I look at Sophie's blog everytime I walk by the computer. That video absolutely thrilled me to. You can tell that Sophie is all there except for those nasty seizures. I have said all along she is a tough little kid. I know it is hard to see her in pain and so weak but give her time...she is a fighter. I can't imagine how you are dealing with all of this and I am not going to try and act like I understand. I thought autism was a rough road...I can't even imagine. She was given to you two for a reason and you are doing a wonderful job. Keep up the good work. I love you Sophie!!!
Miss Lisa
She's doing amazing!!
Sophie is doing so well!!! She looks amazing. Each day is going to get better and better as she heals!!!!
Thanks for taking the video Brandon! It brings us closer to her to see it and the boys love checking in on her all the time. Praying for a better day! Although she seems to be doing amazingly well with all she's been through.
Erin
That is so incredibly AMAZING!!! She's on her way!
I'm so impressed with her...such a brave little girl.
She looks great. It made my day to see her looking at her book and making the frog jump. I love the hair. Keep up the good work Sophie. Come home soon.
Love ya, Aunt Tammy
She looks really good, and making the bunny hop, that was great.
Jen
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