I know this is only Day Eleven of seizure freedom and we still have a long road ahead of us. But it is a road filled with excitement and hope. A road where I get to witness all the new things that Sophie will get to do...that she is ALREADY doing.
To have one morning...JUST ONE MORNING...in which you can wake up next your child with big smiles on your faces...without the knowing that a big cluster of seizures is about to take that all away...it is indescribable. There is still that moment...a moment where I hold my breath and watch intensely...wondering if IT will come. But IT doesn't. And knowing and wondering are two completely different emotions.
I am treasuring each and every moment. Holding on to the moments that use to be stolen from us. Because you just never know. Sophie was once seizure free for 33 days. But the difference between then and now is that we had no idea why Sophie became seizure free. It just happened. There was no change in medication or diet. There was no surgery to explain why.
It's been a crazy few days. Trying to get settled in. Trying to figure out our new routine. I set up a few private therapy sessions for Sophie this week. She had PT this morning which her therapist was quite impressed with how well she is doing so soon after surgery. Tomorrow, I will take her for a short day at preschool. She will get PT and OT while she is there and I will stay with her the entire time.
We have been receiving so much support since we have been home. Aunt Colette decorated our house with flowers, balloons, a banner and a cake for when we got home. Yesterday, Aunt Cindy came over to visit with the girls and brought us lunch. Heather and Jennifer (both friends that live in our neighborhood) brought us dinner last night and tonight. This morning, Stephanie (another neighborhood friend) watched Elsa so I could take Sophie to her PT appt and go to my OB appt**. My mom came over after that to help out with the kids. THANK YOU to everyone for being so supportive so that we can truly enjoy our first few days at home. And how wonderful it has been to be home together as a family...I am bursting with joy.
I promise to update soon with all the new things that Sophie has been doing.
**I had a routine ultrasound to check the position and weight of the baby. Everything looks great.