Because we have never seen her so awake and alert before!!! It is amazing to see her so wide eyed and taking in everything around her. She has her old spunk back plus so much more. She is happy and laughing and just being her silly self. She is saying new words..."home" and "barbar (barbie)" is her latest. She said "home" four times in a row. We told her soon baby girl soon. Hopefully tomorrow but probably Monday. With the little that she has ate today (only a few bites of jello, a quarter of a banana, a couple grapes and a milkshake), she has so much energy. She woke up at 7am this morning (but didn't have a restful night of sleep) and only took an hour nap today. It's a little after 10pm and she is still going strong. She is watching Big Rock Candy Mountain and is bopping herself on the head (like bunny fufu). It is amazing now to realize how much those seizures really wiped her out.
This afternoon, Brandon gave her another shower. For the shower, they disconnect the tubing for the IV and wrap her arm in plastic. It was around 2pm and she wasn't due for another IV med until 6pm. The nurse allowed us to stay disconnected so we took advantage of it. She had PT which she cried the whole time but did wonderfully walking. Then we put her in the stroller and took a long walk outside...it was so nice not having to drag the IV pole around. The nurse came around 6:30pm to give her Zantac through her IV. It leaked and her arm started puffing up. The IV came out of her vein. A blessing in disguise. She is now on all oral meds. She had her first dose of liquid suspension Dilantin mixed with Sprite and she drank it just fine. And she hasn't vomited since right after breakfast this morning!!! I think the only reason she did vomit this morning was because of her gag reflex after taking a bite of toast. I think her esophagus is sore from all the vomiting. After that we gave her only soft foods (see above).
She had so much fun today and she really cracked us up. I am LOVING seeing her like this.
NO SEIZURES TODAY!!!
NO SEIZURES SINCE HER SUBTOTAL HEMISPHERECTOMY!!!
I LOVE THE SOUND OF THAT!!!
23 comments:
She looks so alert in the pictures today. What a difference a week makes! A day makes! She knows what she wants and that's to get out of there... between saying door and home, I don't think she can be any clearer. Hope you get to go home soon!
Give here big hugs and kisses from me.
-Erin
Well, look at your baby girl!!! It's in her eyes! She is "awake"...the cobwebs are gone...the storms are gone!!!!
Praise the Lord!!!
I am SO HAPPY for y'all!!!
Blessings,
Cyndi
And she looks like a movie star! A happy one. CB
She looks GREAT! I'm so happy for you all! I'm glad you'll be headed home soon...too bad we'll just miss you! Continued prayers for a flawless recovery!
She looks AMAZING!!!!
Aloha!
Sheila, Trevor and all
That is just a fantastic update! And she looks so great. What a blessing!
This is such good news. And I like the sound of that, too!
Wow, what a difference in posture, expression and attitude that comes across in these photos compared to when I saw her Wednesday. And even Wednesday I thought she was amazingly alert for having a recent major surgery.
But wow, what a difference. Hopefully Monday is THE day. Fingers crossed...
Elsa blew her a big kiss when she saw her. Hopefully she can give her a real kiss tomorrow. Love you all and can't wait to see you.
Jake
YEAH!!!!!!!! So glad to hear the updates and see such AMAZING progress:) We are so delighted to hear the new and positive updates every day!
Wonderful news- she looks so precious in all the photos- may she continue to heal and be seizure free!
Great news! I'm so Happy for you all! I think that Sophie will never have another seizure! They made it clear to us that it was possible to have seizures after the surgery because of the swelling and she never did and neither has Sophie and that makes me feel like she will never have another one because 3 months after Madeleine's surgery she was off all meds and it has been 15 months since her surgery and we are still seizure free!! You are even more blessed because she was able to keep that motor cortex!!
She looks so alert and happy! What a wonderful outcome you've all enjoyed! Congrats!
I'm so glad to be back in town where we can see Sophie's blog again. Oh My Goodness. She looks wonderful! What a journey this has been for all of you. I love the smile on Sophie's face and the look in her eye's! It looks like she's saying " I'm finally here where I've been trying to get for the last three years!!" A whole new world is opening up to her. What a joy,
Love,
Aunt Barb
She looks great Elaine. The swelling and bruising has really gone down and I'm so glad she is getting back to her happy little self. The words are great also.
Are ya' home yet? Are ya' home yet? Are ya' home yet? Daaaaaaaaaad...how much longer? What a homecoming it will be. I hope everyone gets plenty of rest. Sophie has never looked so good.
Its wonderful to hear Sophie is doing so well and getting better every day!! Can't wait to come visit and see all the progress she is making!
Ed
Wow she looks great, so alert, and I love the ponytail!
Amanda
She looks wonderful. When I look into her big brown eyes it is like you can read her thoughts. LOOK AT ME I'M SEZIURE FREE. THANKS MOM AND DAD FOR FIGHTING FOR ME. So glad you will all be home tomorrow. If you need any help when you get home don't hesitate to call. See you all soon.
Aunt Tammy
Sophie looks beautiful! I hope you're heading home tomorrow...
xoxo
...danielle
Sophie looks absolutely amazing, and she is simply adorable! She looks so great and is just a remarkable little lady. She obviously gets that from having such wonderful, and dedicated parents...way to go mom and dad!
I love the title of the post "where did our Sophie go?" She has been doing so much and come so far ;) Just imagine all the more places she will go. She will cease to amaze you.
WOW Sweet Sophie!!! LOOK at those big beautiful eyes!!! You guys & gals did it!! NO SEIZURES!! And you better have that camera ready for the 1st time Elsa & Sophie see each other -- at HOME finally!!:) I can only imagine the weight that has been lifted from all of you! O Elaine!! You will have your whole family together when your little guy makes his appearance & your sweet Sophie will be even stronger & more full of energy!! Look out mom & dad!;) Now your sleep deprivation will only come from the squeaks of a hungry little newborn boy...{grin}
And Brandon, I loved reading your posts - just wanted Elaine to get the tally {grin}
SOPHIE LOOKS AWESOME! YOU HAVE ALL DONE AWESOME! C U SOON!! Love,
Laura, Matt, Sara, Ryan & Julia
She's looking better and more alert with every new batch of photos you post!
I can't wait to hear how she does once she gets home in familiar territory!
Post a Comment