Thursday, June 04, 2009
What goes down must come...
Up???? Sophie has been vomiting for the last 3 nights...EVERYTHING she has ate for the entire day.
Be forewarned...this post is not going to be pretty.
Sophie has vomited here and there after surgery. In small quantities. To be expected considering everything she was going through.
But once she became awake and alert, she has been wanting to eat. She gets excited when she sees food. She has started eating solid foods on Tuesday. And she has vomited every evening since then. To be graphic...we know it is everything from the day because of the quantity and because you can actually see what is in the vomit.
It is so frustrating. Her IV can't come out until she stops vomiting. We can't come home until her IV comes out. So each day she vomits, it's another day in the hospital. But she is clear to go from a neuro aspect. They do not believe her vomiting relates to anything neurological. So once she stops vomiting, we can be released.
Of course, in the big scheme of things, this is minor. I mean she is NOT HAVING SEIZURES.
Each morning, I wake up optimistic. Another morning without seizures. Sophie's worst cluster was always when she woke up in the morning. They would upset her. I had to be right by her side. They wore her out. I held her and comforted her until she felt better. That is how we USED to start our mornings. That's why I LOVE taking the night shift now. Because that means I get to wake up with her in the morning and see my beautiful girl wake up in peace. It's a wonderful way to start the day. I cannot even express in words what that does for my heart.
But then by the end of the day I am beat. Exhausted. Disappointed that she has vomited again.
To recap the day and to focus on the positive...
Today she had OT and PT. She is doing amazing. Getting stronger everyday. She took a lot of steps during PT with assistance for balance but she was doing a great job bearing weight on her legs. It takes a lot of energy and coordination for her to even take a step. She barely lifts her foot off the ground but she is doing it. It is coming along.
Brandon gave her a shower and she loved every second of it. She got very upset with me when I put the towel around her to take her out.
She loves her stroller and is constantly pointing at the door and saying "doooor". That is something new. Before she always said "doh" but now she has that "r" sound. I am sure if she could say "home" she would because I know that is where she wants to be. She is out of her bed for most of the day.
Brandon and NaNaw took her down to the playroom this afternoon. She had so much fun and did a great job sitting up and playing with toys. She sat for about 15 minutes straight without any assistance.
Later, Brandon and I took her for walk outside and she fell asleep in her stroller. The fresh air was rejuvenating for all of us.