Friday, June 09, 2006

Yeah for Sophie!!!
Yesterday morning, we were suppose to start Sophie on twice daily tablets of prednisone (10mg each). That meant no more daily injections (good news that we didn't have to give her anymore shots - bad news that we had to start a new drug). Well, when we woke up yesterday morning, we realized she didn't wake up in the middle of the night with any seizures. Actually, she had not had a seizure since 2pm on Wednesday (she had a total of 4 clusters on Wednesday - down from around 5-6 that she usually has). She had a small cluster when she woke up around 6:45am Thursday morning - so that meant she went almost 17 hours without a seizure (as far as we know - sometimes they can be so small that they are almost undetectable)!!!

So we decided to give ACTH one more day. What a great day it was!!! Sophie was so happy for most of the day, she was sitting up so well, and best of all - only 2 clusters!!! She had one cluster at 6:45am with mild seizures and another cluster at 2pm with very mild seizures.

Well, that brings us to today. She woke up at 5:45am this morning and had extremely mild seizures. We went ahead and gave her another injection of ACTH. Now we wait and pray. Yesterday was such an incredible day...

1 comment:

great aunt barb said...

What a great update!! Hope the rest of Sophie's day was just as much fun for her as yesterday. Hang in there guys. We know she's on her way.

Love,
Aunt Barb & Uncle Neil