Thursday, June 22, 2006

New Plan...
We spoke with Sophie's neurologist yesterday. The new plan is to keep Sophie on 80 units of ACTH until Monday. We will then start 10mg of prednisone (an oral steroid) twice daily on Tuesday. I am so glad that we will no longer have to give Sophie a shot but I am also scared to be taking her off ACTH. I never want to see her have a bad seizure again. ACTH was able to reduce the number of clusters and also the severity of the seizures (she hasn't had a strong seizure since June 7th).

1 comment:

Vivian Liu said...

Elaine,

Didn't see new posts during the last weeekend. Hope that you, Brandon and Sophie had a great one! Hope that you all slept a lot :).