Thursday, June 08, 2006

Sophie's Development
Before all of this started, Sophie was able to sit up, on average, about 10-15 seconds before falling over - sometimes even up to a minute. Well, once the seizures and medication started, she would no longer sit up. If we tried to sit her up, she would push really hard with her back and legs to fall backwards. No matter how hard we tried, she just did not want to sit up. This was very discouraging because infants that are developing normally before the seizures begin, as well as infants that do not regress after the seizures begin, have a higher chance of developing normally after the seizures have stopped.

So it was so exciting when Sophie rolled over from her back to her tummy (going right only) for the first time ever on Saturday, May 20th. Once she gets to that tummy, though, all she wants to do is lay there and suck her thumb. Oh, how she loves that thumb. She rolls to her left side but has no desire to roll all the way over. This was such great news. Not only is she not regressing but she is still developing!!!

Well, this past Saturday (June 3rd), we started her on vitamin B6 (twice daily - 50mg each). Later that day, more great news!!! We tried to have Sophie sit up (as we try everyday) and she didn't push back! She sat there for a few seconds and then fell over. We were so excited. Was it the B6 or did she just decide to sit up?!?! It is so hard to tell if she is just being a normal 7 month old baby or if she is acting the way she is because of everything else going on. Well, everyday she is sitting up even better. She now sits up for around 5 - 10 minutes at a time without falling over. She can even catch herself if she feels herself falling back. All this has happened in a matter of 6 days - what progress!!!

2 comments:

great aunt barb said...

Can't think of a better way to start our day than to check on Sophie and find such a positive note!!! Give her a big hug and kiss from all of her Kansas City Cheerleaders!!

Anonymous said...

I'm so glad to know everything is going to be ok. I love seeing all your smiles!Like aunt deb says "Keep Sophie at the top of your prayer list",I sure do that. I pray for her every morning and night. I'm so thankful that the lord blessed us with Baby Sophie and the courage to know everything will be ok.
Love Always,
Miranda