The ups and downs (by Brandon)....
Long time no blog. Since the last update, Sophie has been about the same. She continues to have mild (sometimes almost unnoticeable) seizures after she wakes up. The good news is that it has been 11 days since she has had an episode that upsets her. We were hoping that they would be completely gone by now as we would prefer not to put her on Topamax. The plan would be to start tapering off of the steroids starting in about 8 days. If the seizures aren't gone though, the next medicine would begin.

Yesterday, Sophie revived her ability to sit up unassisted as long as she wants (a father's day present to daddy). She continues to be happy and has found her voice again too. Every time we lay her down to go to sleep or when she wakes, she pushes up on her arms and "screams"/ahhs at herself in the mirror attached to her crib. She also rolled over to her left side for the first time on Saturday.

The weight keeps adding up every day. She is eating about 25oz of food a day (not including her milk every 3 hours), which is much higher than the recommended amount for a baby not on steroids (please send food donations to 1467... -- joking). Actually, if anyone knows of a good chiropractor, let us know.

We hope for a positive step forward today. Thanks for all of the kind words and encouragement; it really does make a difference!