Sophie had a neuro appointment this past Friday. We decided to start her on Depakote. For the past week, Sophie has been having a different type of seizure. Also, the number of seizures have been slowly creeping back up. It is so sad to watch. Her seizures have also been stronger causing her to fall down. She has numerous new bruises to prove it. I cannot count the number of times she has banged her forehead on the table while eating or on a toying while playing this past week. Just today, she got a big knot on the top of her forehead when a drop seizure caused her to hit her forehead on the wooden part of the staircase. That poor forehead of hers!!! Her new seizures last about 3 seconds long, as opposed to the quick one second head drop seizure, and are classified as tonic seizures. We started her on 125mg of Depakote this morning. This is the second time she has tried Depakote. Unfortunately, it did nothing for her seizures last time but after trying 8 different medications and the ketogenic diet, your options become limited.
1 comment:
Hope the depakote can minimize those tonic seizures. We plan to see you all at Thanksgiving if nothing changes here. Hang in there.
Love,
Aunt Barb
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