We leave tomorrow morning for our trip to Detroit. I am trying to stay strong...for Sophie. And a piece of me is already starting to miss Elsa and Charlie. I hate this. I hate it so much. But the possibilities that this trip may bring...it is worth every moment.
So my current thought...
What do I tell her?
We have told her we are going on a trip to see Dr. Chugani. She knows who he is and she is kind of excited to stay in a hotel. But we haven't told her anything beyond that. Last time around, I didn't worry about this. She wouldn't have understood anyway. But this time? This time is a whole different ballgame. She is so smart.
I mean I have to tell her something. Can you imagine waking up from brain surgery and not knowing what the heck just happened?!?! So I have to prepare her somehow. I just don't know how.
5 comments:
That is so hard. If it were Julia I would be hesitant to say anything because I know she would get upset, not even understanding what "surgery" is, just upset about hospitals and doctors being involved. But you're right, you have to tell her something. I can't believe its here. I will be thinking of you guys every step of the way.
Oh honey...this just tears me up. I wish I had advice...but I just have tears and love.
XO
...danielle
I too, wish I had words of wisdom, but I have none. Because, perhaps, in the end, there are none.Just that minute to minute survival mode we have learned to operate under when we have these medically complicated children. I think the words will come to you when you need them. I really do.
Sending you with prayers of peace and strength for the days ahead.
Wow! I agree with what the others have said. I think the words will come to you when you need them to. Those child life specialists can be helpful. I do think she needs a little info pre-surgery, but I would keep it pretty general. Probably not necessary to go into too much detail with her.
Please, please let me know if you need anything. I am only a short drive away, and I would love to do something...if only it is just to come and bring you a coffee and a hug. I'm serious.
Call or text me anytime! 314-650-7952
I will be thinking about you nonstop, so you might as well let me do something!
Ohhhh....! I've got nothing for you either. I have no idea what I would say if in your situation.
Thoughts and prayers to you and your little Sweetie.
Many hugs....
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