Late yesterday afternoon, I received a phone call from Dr. Epi with the results of the surgical conference at SLCH. Brandon and I had a long discussion with her, in which, she was so incredibly informative on so many levels. To summarize the call, they concluded that Sophie is a surgical candidate and that it would be a case they would take on!!! What a relief!!!
I completely trust Dr. Chugani and the surgical team at CHM but to have another incredible group of doctors agree with their findings...just gives me such an incredible sense of calmness. Calmness that we are doing what is best for Sophie. Still scared out of my mind for her to go through that but at least I know we are making the right decision.
Even though SLCH is only 20 minutes from my house, I cannot imagine having the surgery anywhere but with the surgical team at CHM. Sophie's case is complicated and the surgical team at CHM has the most experience with the type of surgery that Sophie will have. Dr. Epi was even familiar with Dr. Chugani's case load. I sometimes forget that those outside the Infantile Spasms (IS) community may not realize the expertise Dr. Chugani has regarding IS. Families from all over the country...actually all over the world...seek his advice. Click here for his bio.
I will update soon regarding the phone conversation that I had with Dr. Chugani and Dr. Epi.