So, I called first thing Thursday morning and his first available appointment was in August. I explained that August would be useless since Sophie is scheduled to have surgery in July. So the receptionist said that she would talk to the doctor and see what he wanted to do. A few hours later, the phone rang and it was him. I was quite surprised. It took 2 months to see this doctor initially, so the last thing I was expecting was a call from him directly. I explained everything and he said that he would present Sophie to their surgical conference that meets every Monday but it would not be next week because they were a little back logged with presenting cases. He wanted to talk with the neuro I had met in the hospital last month while Sophie was getting her EEG because she was most familiar with Sophie's current situation. Less than 30 minutes later, he called back saying they had an opening this Monday (today) and that he and the other neuro would be presenting her case. All I needed to do was drop off the CD with Sophie's latest PET scan and MRI that was done in Detroit. He said that it was a good thing I had the EEG done in St. Louis because they do not rely on other hospital's EEG.
On Friday, I received a call from the neuro I had met in the hospital to get more information regarding Sophie's current situation. She said that I would get a call either Monday or Tuesday with the results from the surgical conference.
I feel so incredibly fortunate to have so many doctors interested in Sophie's case. Though it may put a small doubt in my mind if SLCH believes Sophie is not a surgical candidate, I have to remember that they are conservative and that Sophie is not a typical surgical candidate. But if they do believe she is a surgical candidate...I'll just feel that much more confident. Because even though it is hard to come to terms with brain surgery, I know I have found the best in Dr. Chugani and his team.
**In 2008, U.S. News & World Report recognized St. Louis Children's Neurology/Neurosurgery as 6th-best program in the nation.