So I e-mailed Dr. Chugani at 10:44am this morning...
Wow! Talk about a quick response.
He believes we should come up to repeat testing. The only problem is...I don't know if I really want to put Sophie through all that again. I have to believe that there is a chance that things have changed and she might be a surgical candidate. But I don't know if I believe that. Not even a tiny bit. But what else do I do? I am out of ideas. Sophie's local neuro is out of ideas. Dr. Chugani is out of ideas (as to trying another treatment option besides surgery). She still remains med free except for the neurontin at night. Her seizures still remain around 40 a day. Her development seems to have slowed.
I am so torn.