It has been 3 days on Banzel at 100mg per day. We haven't seen any results but we weren't expecting to see any at such a low dose. Tomorrow we increase the dose to 100mg twice a day. The straw method of taking the medication is working...such a relief. It is so easy to get her to take her medicine. I am in LOVE with the straw method. I actually tried to get her to take her omegas that way but they were too big to fit in the straw. I can't believe I just found out about it. It would have made things much easier in the past.
I am so hopeful that Banzel will be the "it" drug for Sophie. I haven't been this hopeful in such a long time. It is scary having my hopes up so high at the moment. But at the same time I find myself having a renewed sense of peace. Peace that no matter what happens, Sophie is going to be okay. That she is happy. That is what matters the most. That her smiles consume her day. My day. Her smiles far outnumber her seizures. She is such a happy child. My favorite part of the day is right before bedtime for the girls. And not because it is "right before bedtime". The girls are in their PJs. Fresh out of the bath. Smelling all sweet. Teeth are brushed. They know it's bedtime but they get all giddy. There is this unspoken vibe between them. And they both start belly laughing. Sophie is doing circles around Elsa. Then she gets right into her face. Eye to eye. And they both just start laughing. Then Sophie runs off. Elsa can't take her eyes off of her. Then they start playing, more laughing and Sophie just being her goofy little self. I will have to get this on videotape and upload to the blog soon. It is just way too adorable.
I am so hopeful that Banzel will be the "it" drug for Sophie. I haven't been this hopeful in such a long time. It is scary having my hopes up so high at the moment. But at the same time I find myself having a renewed sense of peace. Peace that no matter what happens, Sophie is going to be okay. That she is happy. That is what matters the most. That her smiles consume her day. My day. Her smiles far outnumber her seizures. She is such a happy child. My favorite part of the day is right before bedtime for the girls. And not because it is "right before bedtime". The girls are in their PJs. Fresh out of the bath. Smelling all sweet. Teeth are brushed. They know it's bedtime but they get all giddy. There is this unspoken vibe between them. And they both start belly laughing. Sophie is doing circles around Elsa. Then she gets right into her face. Eye to eye. And they both just start laughing. Then Sophie runs off. Elsa can't take her eyes off of her. Then they start playing, more laughing and Sophie just being her goofy little self. I will have to get this on videotape and upload to the blog soon. It is just way too adorable.
3 comments:
It is a long,long road to peace.It doesn't mean we have surrendered to all the injustices thrust upon our little ones,it just means we have grown in faith and understanding that no matter how WE will it,in the end it is not our will.I hope that peace remains with you and if and when it doesn't, I wish you strength.Enjoy those carefree end of the day moments.They have always been some of my favorite.Love to sweet Sophie.
My fingers are crossed for Sophie. I really hope Banzel is the one!
Elsa is just adorable!
Hopefully this will also be Sophie's miracle drug. We didn't see any real results until we got to our full dose, so hang in there. We're at day 18 seizure free and the doctor just gave us the go ahead to start weaning his Lyrica :-) One med down and one more to go.
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