By the way, we are now down to 125mg of Depakote twice a day. Her seizures are a bit stronger than before the wean and on some days she may have a few more than usual but isn't it worth it??? She was sacrificing development for a bit more seizure control. Isn't that a tough decision to make??? On one hand, I hate seeing these stronger seizures. On the other hand, I am ecstatic over her leaps and bounds on communication. Is this selfish on my part? No, I am her mother and I am only doing what I think is in her best interest (or at least...that is what I tell myself). Well, we have a neuro appointment next Tuesday, so I will update on what we are to do about this never ending seizure battle. By the way, May 10th was 2 years to the day when Sophie was diagnosed with Infantile Spasms. 2 years!!! I can remember that day like it was yesterday...ugh!!!
I just couldn't end this post on a negative note with it being such great news, so I will share a little story that filled my heart with joy today... Sophie was giving Elsa kisses today, like she always does. She loves to give her kisses and Elsa loves to get them. They entertain each other so much. Sophie will laugh in Elsa's face and Elsa will laugh right back at her. Well, after Sophie gave Elsa one of her big smooches, Sophie turned around and gave me one. Not that she has never done that before. But right at that moment, I saw the big picture....my little girl spontaneously giving me a kiss...how could life get any better.