Friday, April 27, 2007

Ups and downs...

What a week it has been!!! When we came home from Johns Hopkins last Thursday (the 19th), I was ready. I had convinced myself that this diet was not going to be that hard. Then reality hit Friday morning when I had to prepare my first keto meal. Friday was a whirlwind. I think the only time I left my kitchen was to go to the grocery store. I had to prepare 3 keto meals and 2 keto snacks. If I had time to breakdown and cry, I would have. This diet has been emotionally and physically exhausting. Thank goodness Brandon was home all week. I am not sure I would have made it through the week otherwise. Things have been getting easier in preparing the meals but it is still emotionally exhausting. Sophie's seizures have been all over the place. She has good days and bad. One day, she will only have a few seizures. Then the next day, she will have 60 seizures. There is so much fine-tuning that needs to be done on this diet. It is so hard to figure out what we are doing right and what we are doing wrong. To top things off, Sophie broke out in a rash last Saturday (the 21st) that seemed to be getting a little worse each day. Then on Wednesday (the 25th), the rash was all over her body so I took her to the Pediatrician. Sophie had a virus which resembles chicken pox but much milder than chicken pox. It was probably something she caught while at the hospital. Sorry I haven't posted in so long but every time I sat down at the computer it had to do with meal planning. I still believe that this diet will work. Thank you all for your kind messages and prayers. I will post pictures soon.


Great Aunt Barb said...

I'm sure the good days will start to outnumber the rough ones soon. I have heard through the grapevine that Sophie has got crawling down to a fine art!! Now that she's more mobile there's going to be a whole new world out there to explore like nik-naks, electric cords and toilets! Between weighing grapes and green beans and chasing her I know you'll be busy......and I hope it's the happiest busy you've ever been!!

Love to all of you,

Aunt Barb

Kelly said...


I've been reading Sophie's story for awhile now, and I just want to encourage you: Don't Give Up! I'm sure you're doing a fantastic job with the diet! It's very difficult--I know--we did it too. Unfortunately, it didn't help our daughter like it probably will Sophie (different seizure disorder).

I have a suggestion or two to help make it easier, if you'd like some advice. Feel free to email me through my site if you'd like. I don't want to overwhelm you more, but if you can handle some advice, I'd love to help!

Hang in there!