Sophie is loving all the additional food. It's not much but she will take what she can get. Lately, she has been more aware of what we have been eating. We use to be able to eat anything around her and she wouldn't even care. Now, if something goes in our mouths, she wants to know what it is.
Her seizures are about the same. She has had a few clusters that are worse than normal. Last night, she woke up around 4am with a cluster that made her upset. But with anything else, any kind of adjustment to her system, and her seizures can get worse...like when she is sick or when she had ear infections. The increase in seizures are temporary and as her body adjusts, the seizures go back down. So this is what we are hoping for...that within the next week, her seizures will stabilize and we will continue the wean. Please, please, please, let that be because I do not know how much more of this diet I can take!!!
Her seizures are about the same. She has had a few clusters that are worse than normal. Last night, she woke up around 4am with a cluster that made her upset. But with anything else, any kind of adjustment to her system, and her seizures can get worse...like when she is sick or when she had ear infections. The increase in seizures are temporary and as her body adjusts, the seizures go back down. So this is what we are hoping for...that within the next week, her seizures will stabilize and we will continue the wean. Please, please, please, let that be because I do not know how much more of this diet I can take!!!
1 comment:
All our fingers are crossed and prayers being sent that her wean is fairly uneventful. Just a litle longer.....you guys and Sophie will feel like you've been let out of a diet prison.
Love,
Barb
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