On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.
Thursday, November 19, 2009
We're home.
And all I have the energy to say right now is...
Can it really be this exhausting??? I am emotionally and physically drained.
I can't wait to hear. We did all the followup locally, so I missed Dr. C's comments after surgery. I bet they are thrilled to hear Sophie is doing so well given that she wasn't an "ideal" candidate. They should be proud of their accomplishments:-)
10 comments:
honey...not only CAN it...it IS! Rest...and share when you're ready.
xoxo
...danielle
A three day visit to Detroit? Even if it was a triumphant visit, YES, it can be exhausting! Can't wait to hear about it.
I have NEVER had to endure what you surgery parents have....So I can only IMAGINE! The "little" appointments that Colby has totally wipe me out....
Let us hear when you can....
Cyndi
PS: H1N1 for both of us today, and I am DEPLETED just from THAT!
Yes, it can be and is. Glad you're home though.
It sure is exhausting...I think just setting foot back in that hospital is hard for you guys and for Sophie.
Hugs,
Sheila
Hugs. You will feel more energetic in a few days.
I can't wait to hear. We did all the followup locally, so I missed Dr. C's comments after surgery. I bet they are thrilled to hear Sophie is doing so well given that she wasn't an "ideal" candidate. They should be proud of their accomplishments:-)
Erin M.
hows sophie doing. havent seen an update since you came back from detroit :)
Just checking in again to see what's what with little Miss Sophie and the rest of you....
Let us hear from you when you can!
SO happy that your family will have a MUCH brighter year this go 'round!!!
Cyndi
Starting to worry about you! Let us all know how things are going when you have a chance. I am sure you had a busy holiday season.
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