Friday, August 07, 2009

Sweet Voice...

Here are a few words that I was able to capture on video. It was right after she woke up and she was in a really good mood. A time, not that long ago, we would have instead been cuddled up on the couch because the seizure monster would have taken over. Sophie always woke up happy but it was only moments later that a cluster of seizures would wipe her out. That I would have to hold her in my arms until she regained her strength back to face the day. I cannot even begin to imagine what it must have felt like to start EVERY SINGLE DAY like that for OVER 3 YEARS. To have your brain in an electrical storm so bad that it takes over your entire body and drains all your energy. I treasure a lot of moments but now I especially treasure the moments right after she wakes up because they are no longer stolen from us.

22 comments:

Tara - Aidan's Mom said...

Great video of Sophie. It brought tears to my eyes hearing her sweet voice. I can't wait for the day I can hear Aidan's voice again, it's been too long.

MSKMOM said...

Simply amazing...Elaine, she has overcome so much and looks great. What a miracle!!! She sounds so good. I cannot imagine how happy you are to be able to wake up every morning to such a happy little girl and no more seizure monster to haunt your days.

Adesta said...

Wonderful! She's such a darling. So thankful that you all have found your happy ending!!!

Katie said...

That is truly amazing and awe inspiring. She has come so far. You have all done a fabulous hard work and had more than your fair share of bumps in the road, but now is your time. Sophie's time to SHINE.
Well Done = ]

Blessings from Australia xox

Kristine said...

WOW!!! Can't believe how your lives have turned around! You all deserve it. :)

Anonymous said...

Yay Sophie!! We need you to teach Julia to say please!! Keep up the good work!! Love Ya,

Aunt Barb

Holli said...

Absolutely amazing, Elaine! I honestly had to stop this in the middle to regroup from the tears. Truly wonderful to see this progress! Thank you so much for posting this. You've told us how far she has come, but actually seeing it makes all the difference.

blogzilly said...

Wow, that is exceptional. Wow.

Colby said...

Precious....Just precious....I am amazed!!!....I know y'all are....PLEASE allow us to continue to follow her progress.....She continues to be a miracle in the making!

Thank you...

Blessings...

Cyndi

baby trevor's mommy said...

So cute that Bristel's beggin' to hear it again! She's yum-a-licious!

...danielle

MJStump said...

I love this video! I start to cry each time I watch it...with that said, I can imagine how elated you all are with her progress. Amazing..simply amazing :)

Anonymous said...

I can't stop watching this video! I love it :) I watched it 3 times last night and already 2 times today at work. My favorite is "all done". Have a great day!
Colette

Our Sweet Sophie said...

Thank you all for sharing in our joy. My personal favorite was "thank you". My mind went blank and I couldn't think of all her 2 syllable words. I asked her to repeat "thank you" even though I had never heard her say it before. I was shocked to hear her say it and with such clarity.

Anonymous said...

Wow! Sophie's video is just amazing!
The best part is that she is so happy b/c those seizures are GONE!
She is doing so well and is just so beautiful and precious! ENJOY! You've earned it!
Jean W.

Susan said...

What a pumpkin. It is sooo great to hear how wonderful she is doing. I love reading your updates - always brings tears to my eyes.
Susan

KC's Mama said...

How awesome!! It seems like she is doing so well, and I am so happy for you all! It was a long, long road but it looks like the payoff is finally here!
Congrats on your baby boy too : )

Karen

www.caringbridge.org/visit/kcmahoney

JSmith5780 said...

What awesome development! Congrats Miss Sophie. Keep up the learning!

Anonymous said...

That's so awesome! Now you'll have to come for a visit so Sophie can see Mickey :-) Yay!

Erin

Reagan Leigh said...

Oh my goodness, that is just too cute!! So happy to hear how great Sophie is doing! It is a miracle!

Lori said...

I have tears in my eyes. I am so happy for Sophie. It must make her feel so proud and you too. It is just amazing. I am so glad she is making so much progress so soon. Yay Sophie!!!

Lori and Nora

Katie said...

Elaine, that is so, so incredible! I'm all choked up. What an absolute miracle. A mircale!

Benton Family said...

I found your blog through the IS forum on yahoo. You left me a comment about my daughter Kate. I was overjoyed to see your sweet Sophie. What a precious gem she is! I look forward to following her journey through your blog! Hoping to hear Kate say sweet words soon...enjoying her laughter and hugs each day for now.

Kandra