We are still waiting. But we are one step closer. We met with Dr. Chugani on Tuesday morning before the AMT PET scan. He had the results of the MRI....
"...Slight asymmetry noted in the left frontal and parietal lobes which is smaller than right with associated blurring of the gray-white matter interface in the left frontal lobe may represent underlying cortical dysplasia..."
This gives him one more piece of evidence that the brain abnormalities are only on the left side. The PET scan results from last month showed abnormalities in the left parietal, temporal and occipital lobes. I hate that it is showing abnormalities in a new area of the left hemisphere BUT at least it is still the LEFT hemisphere.
With this new evidence, Dr. Chugani is GOING TO PRESENT SOPHIE'S CASE TO THE SURGICAL COMMITTEE on October 27th as long as the AMT PET scan does not show any abnormalities on the right hemisphere. Surgery is tentatively scheduled to begin on November 21st.
"...Slight asymmetry noted in the left frontal and parietal lobes which is smaller than right with associated blurring of the gray-white matter interface in the left frontal lobe may represent underlying cortical dysplasia..."
This gives him one more piece of evidence that the brain abnormalities are only on the left side. The PET scan results from last month showed abnormalities in the left parietal, temporal and occipital lobes. I hate that it is showing abnormalities in a new area of the left hemisphere BUT at least it is still the LEFT hemisphere.
With this new evidence, Dr. Chugani is GOING TO PRESENT SOPHIE'S CASE TO THE SURGICAL COMMITTEE on October 27th as long as the AMT PET scan does not show any abnormalities on the right hemisphere. Surgery is tentatively scheduled to begin on November 21st.
5 comments:
WOW! A giant step and so quickly! But if it is truly for the best, than it is worth it. Look how well little Jackson is doing!
Good luck with the last of the testing. I hope everything is conclusive and all point towards the left hemi.
Oh Elaine! I have a huge lump in my stomach....I can't even imagine the feelings and emotions that you are having. These next couple of months will be difficult for all of you, but if it gets Sophie to seizure freedom.. it will be all worth it. Can you even imagine a world without seizures??? Good luck....I will be thinking of you all every day!
I'm over the moon...and worried...and teary...and SO thrilled that you're moving towards answers...and possibly A final answer!
love & prayers...
...danielle
Congratulations!?!?!? Hard to know what is the proper thing to say with this crazy roller coaster you ride.I know for us,I have always said we felt so fortunate ,that Zoey was a surgical candidate.Strange to most but to you and I,we understand those words.You are doing a great job Elaine.Remain strong.I wish I had the proper words to ease you mind and settle your heart but ... I will just continue with prayers.
That sounds like a plan to get rid of the seizures forever!!! I know you will be in great hands with Dr. Sood and Dr. Chugani. If you have any questions that I can help you with please let me know. God Bless, Madeleine Hamm
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