Sophie handled her first infusion fairly well...just a little nauseous. It was getting the leads for the EEG and the IV started that was the hard part. She screamed for at least an hour straight. The nurses kept commenting on how strong she is. By the time they actually started the infusion, it was 11:00am. Since this was her first infusion, they wanted to do the infusion at a slow rate which would take about 9 hours. Well, when the doctor came by around 4:00pm on Wednesday, he suggested we stay the night since we were going to be here so late anyway. He wanted her to be observed for a few hours after the infusion and also wanted to collect further readings on the EEG. Since the hard part was already done, we agreed.
When we got home on Thursday, I gave her bath, she ate some lunch and then took a nap. By the time she woke up from her nap, she was back to her usual self. She is such a trooper. If only I could bounce back so quickly. She just amazes me. Only time will tell if this treatment will work as it takes awhile to build up the immunities. I will keep you all posted.
Thank you all for your thoughts, prayers and kind words. Thank you especially to Grandma Debbie for watching Elsa and coming to the hospital on Thursday. Thank you Uncle Jason and Aunt Colette for coming by the hospital so Elsa would not starve (Brandon tried giving Elsa formula on Thursday and she refused to drink it but luckily we arrived home soon after) and bringing us lunch.