Sunday, March 09, 2008

First IVIG treatment...

Sorry I did not post sooner. We left for the hospital at 6:45am on Wednesday morning and did not get home until 11:00am on Thursday. Needless to say, it was a very long 28 hours. We were only suppose to be there until late afternoon on Wednesday.

Sophie handled her first infusion fairly well...just a little nauseous. It was getting the leads for the EEG and the IV started that was the hard part. She screamed for at least an hour straight. The nurses kept commenting on how strong she is. By the time they actually started the infusion, it was 11:00am. Since this was her first infusion, they wanted to do the infusion at a slow rate which would take about 9 hours. Well, when the doctor came by around 4:00pm on Wednesday, he suggested we stay the night since we were going to be here so late anyway. He wanted her to be observed for a few hours after the infusion and also wanted to collect further readings on the EEG. Since the hard part was already done, we agreed.

When we got home on Thursday, I gave her bath, she ate some lunch and then took a nap. By the time she woke up from her nap, she was back to her usual self. She is such a trooper. If only I could bounce back so quickly. She just amazes me. Only time will tell if this treatment will work as it takes awhile to build up the immunities. I will keep you all posted.

Thank you all for your thoughts, prayers and kind words. Thank you especially to Grandma Debbie for watching Elsa and coming to the hospital on Thursday. Thank you Uncle Jason and Aunt Colette for coming by the hospital so Elsa would not starve (Brandon tried giving Elsa formula on Thursday and she refused to drink it but luckily we arrived home soon after) and bringing us lunch.


Reagan's Grandma said...

Sophie is such a little beauty! Hang in there Mom!!! I can't even begin to know how overwhelmed you sometimes feel.....just know that there are people out here praying for you and your lovely family. We are all in this together and we will not stop our prayers even WHEN ALL of our babies are healed!! And I truly say ....they will be healed! All my love to you and your family....Janet(AKA- Reagan's Grandma)

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