I received a call from John Hopkins on Friday. They have reviewed Sophie's medical records and have accepted her into the program. The only problem...the next opening is not until April 16th. I really do not think I can wait two months to start the diet. Sophie is having between 50 to 75 seizures a day. It is so hard to watch her have seizures all day long. Now that she is more mobile, her seizures have become more dangerous to her physically. She will be standing while playing with a toy and then suddenly have a head drop seizure and smashes her face right into the toy. It is so sad.
Here's a picture of her favorite toy.
She loves to push this toy around the room.
The other night, when she was playing with her favorite toy,
she had a seizure and cut the side of her face.
You can also see her busted lip from when she had a seizure
while sitting in her highchair.
She loves to push this toy around the room.
The other night, when she was playing with her favorite toy,
she had a seizure and cut the side of her face.
You can also see her busted lip from when she had a seizure
while sitting in her highchair.
1 comment:
It's so exciting seeing Sophie up and around. I'm sure you're anxious to get the Ketogenic Diet started. Keep up all the good work you're doing with Sophie...it sure seems to be paying off!!
Love,
Barb
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