Now here is where I am lost... Of course I think of these things late at night and not when I am on the phone talking with the neuro. Is it good that Sophie's Depakote level is so high with being on a not so high of a dose? Does this mean that since her levels are so high and she is not seizure-free that she will not become seizure-free on Depakote?
We also discussed genetic testing. She will be having another test called microarray analysis done once I have cleared it with our insurance. I was naive in the beginning and believed that whatever test our doctor (who is in-network) ordered would be covered under insurance. When Sophie was tested for ARX gene mutation, the test was performed in a lab that was not covered under our insurance and we were billed around $950 (this amount has been reduced to around $650 and we are still debating it). Our appointment with the pediatric neurologist that specializes in genetics is not until June 2007 (he only sees patients twice a month). In the end, I really do not think it will matter because I believe that whatever caused Sophie's brain abnormalities is very rare and will not be discovered anytime soon.
Oh, and we are also increasing her Depakote to 625mg a day (250mg in the morning and 325mg in the evening).