Thursday, June 17, 2010

Survey says...

No change. EEG looks the same as it did 6 months ago. But it is actually worse than what I thought it was*. After the neurologist explained the findings, I was surprised to hear how much spiking she was having. So she went back and compared this one to the last one. They look the same. She has some spiking from the left central region when she is awake. She may go 30 minutes with nothing and then a few spikes. But the spiking is almost constant when she is asleep.


*I was under the impression she was only having rare, intermittent spiking.

4 comments:

lisa said...

Hmmm...I know it's disappointing to hear about the spiking and to know that it's been going on all this time. I have to say I still don't fully understand spiking and what it means for a brain trying to function day to day. I know spiking leads to seizures but beyond that...what? Did the neuro give you any feedback?

I hope the progress Sophie is making is a comfort to you that whatever is going on, she is continuing to develop and grow. Our girls are so amazing.

Sophie's Story by Elaine said...

Lisa...I don't fully understand spiking either. I interpret it as Sophie has an increased risk for having a relapse and that the medication she is on is preventing any breakthrough seizures. And that I will continue to monitor medication levels through blood draws and adjust dosage accordingly. And that she will mostly likely stay on medication unless the spiking goes away. I do not mind the depakote but I want her off dilantin. I just wonder if I would see a decrease in her aggressive behavior if she was off of it. Who knows. But...yes...our girls are amazing :)

happy's mommy said...

Ugh. Sometimes I just want to go on an information strike! Because it seems like it would be SO much easier to just live...not knowing if something was brewing underneath their cute little faces.

(((((hugs)))))

...danielle

Colby said...

I agree with Danielle....I don't "cruise" the internet like I used to and drink in every little bit of info...I get way too overloaded....

At this point, I guess it is just a blessing that no seizures ARE breaking through....And if the meds can continue to prevent that...Well, then, I know you will be thankful for that....

Take care...

Cyndi