Quinn never made it to the hospital today because her parent's insurance has yet to approve the treatment of ACTH.
I am speechless.
Outraged.
At how a child could be sitting at home suffering with seizures without treatment in hand because of insurance issues.
Because Questor decided to charge over $25,000 per vial for ACTH. In which it takes an average of 5 vials per treatment. Yes, that is right. It will cost over $125,000 for a treatment that is not even guaranteed to work. A treatment that only a few years ago cost around $12,000 in TOTAL.
I am speechless.
Outraged.
At how a child could be sitting at home suffering with seizures without treatment in hand because of insurance issues.
Because Questor decided to charge over $25,000 per vial for ACTH. In which it takes an average of 5 vials per treatment. Yes, that is right. It will cost over $125,000 for a treatment that is not even guaranteed to work. A treatment that only a few years ago cost around $12,000 in TOTAL.
So please click here and show this family your support. I am sure they could probably use it right about now
And to read more about how Questor keeps parents and caregivers waiting on the edge of their seat to find out if ACTH will be their child's miracle drug click here.
7 comments:
I notice immediately that little Quinn and Miss Zoey shared a little "something"special in common.I clicked over and pray that they get things straightened out quickly.
You all seem to be cruising along beautifully.Sophie looks great and never ceases to amaze me!
Clicked over and will keep the family in my prayers. Quinn is darling!!!
Thank you so much for posting this.You don't know how much this means to me.
Questcor is simply evil.
That is disgusting!! I can't believe how difficult it is to get medication for your children in the US. I sincerely hope that the system goes through some big changes in the near future. Poor Quinn. I'm going to check out her blog!
GRRRRRRRRRRRRRRRRRRRRRRRR!!!!!
Thank you for helping bring this to the light Elaine...
...danielle
This precious little thing....It is just immoral...I will cehck out the blog....Thanks for letting us know....
Cyndi
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