I can't hold it in anymore. It's been 8 days since Sophie has had a seizure. Her first jackknife seizure was on May 7, 2006 (a little over 19 months ago though looking back she was having subtle headdrops for about a month before that). She has had daily seizures ever since then until Monday, December 3rd around 2pm. I am so excited but so scared to get my hopes up too high. She has been very sick for the past 2 weeks but started feeling better yesterday and has been eating and doing very well today. I guess this next week will be the true test if she remains seizure free. Her neuro thinks maybe it was because she was ketotic but her seizures were horrible when she was on the highest ratio during the ketogenic diet. She started a second round of Depakote on November 10, 2007. I am not going to try too hard to figure out why. I am just trying to enjoy these days especially with her feeling so much better these last 2 days!!! I feel like I am just going to burst with joy!!!
4 comments:
What a wonderful early Christmas present!! Every one of these days is a celebration.
love,
Aunt Barb
That's great news!! I'm so glad to here Sophie is feeling better.
Ed
Congratulations! I am so happy for the both of you! Happy Holidays!
Wow!!! You go Sophie!! I'm so happy for you!! Dep has been working for Jordan, too, for ~6 weeks now! They must be thinking alike (and I, like you Elaine, am scared to jinx it by even thinking about it).
Post a Comment