We finally got Clobazam in the mail two weeks ago. It only took five weeks to be shipped from Canada. Luckily, we bought a three month supply. Sophie started the Clobazam the next day which replaced the Clonazepam. She started out at 2.5mg/day and is now at 5mg/day. She is still currently on 150mg of Zonegran. She is tolerating the Clobazam fairly well. We have seen a slight decrease in seizure and will continue to increase the Clobazam 2.5mg each week until we reach 10mg/day.
1 comment:
Looks like Sophie really enjoys the Children's museum. Looks like she's not having a bad time at the hospital either. Hope the tubes give her little ears some relief. I'm so glad her medecine came so she can get a good amount in her before her new diet. I'd hate for her to be starting a new med and a new diet at the same time.
Give her a hug and kiss from all of us.
Love,
Barb
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