Doctor visit...
We went to the neurologist today. Not much to say except we are increasing her Topamax from 60mg/day to 75mg/day. We are also going to decrease her B6 from 200mg/day to 100mg/day for the next 2 weeks. If there is not an increase in seizures over the next 2 weeks, then we will stop the B6. She is STILL HAVING SEIZURES. It has been 85 days since she was diagnosed with Infantile Spasms and about 130 days since the seizures started. We talked a little about what the long term possibilities are for Sophie. I am trying to come to terms with the fact that this is something that we are going to have to deal with for many years to come - whether we are worrying about a relapse or whether or not the infantile spasms will turn into a different kind of seizure. We hope to gain seizure control with Topamax. We hope to gain it very soon. I know I should just concentrate on what is happening today; but, as a parent, I cannot help but wonder what the future holds for my precious baby girl - whether if she will never have another seizure again or whether if she will become an accountant like her mommy and daddy (let's hope not!).