tag:blogger.com,1999:blog-29367137.post5154432195111698886..comments2023-10-09T05:02:54.951-05:00Comments on Our Sweet Sophie: Felbatol...Sophie's Story by Elainehttp://www.blogger.com/profile/00415731740298071423noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-29367137.post-32443764072132527142009-05-01T17:23:00.000-05:002009-05-01T17:23:00.000-05:00We tried Felbatol but only for a short time becaus...We tried Felbatol but only for a short time because Reagan's seizures seemed to get worse. I do know of several kids that it seems to work really well for. You just never know unless you try! Hopefully this will be Sophie's miracle medication and surgery won't even be necessary! Take care,<br />TeraReagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.comtag:blogger.com,1999:blog-29367137.post-10276332368459555682009-05-01T07:35:00.000-05:002009-05-01T07:35:00.000-05:00With kali, it took a bit before we noticed anythin...With kali, it took a bit before we noticed anything with the Felbatol. I would say a good month. It wasn't sudden, very slow.<br />Kali's final dose is 1.5ml 3/x daily. We had to work up slowly also.Pink Daisy Photographyhttps://www.blogger.com/profile/14152497763083641805noreply@blogger.comtag:blogger.com,1999:blog-29367137.post-19379410196262254862009-05-01T07:09:00.000-05:002009-05-01T07:09:00.000-05:00Never heard of that one...but then we've only been...Never heard of that one...but then we've only been at this a fraction of what you guys have been.blogzillyhttps://www.blogger.com/profile/08268388544631653375noreply@blogger.comtag:blogger.com,1999:blog-29367137.post-89060579288864456852009-05-01T06:35:00.000-05:002009-05-01T06:35:00.000-05:00I'm so glad that you and Brad have gotten such gre...I'm so glad that you and Brad have gotten such great feedback from the specialists in this small community that devote themselves to treating epilepsy.<br /><br />Our fingers are crossed that Sophie will be home from her surgery and into her follow up therapy by the time her little brother arrives. <br /><br />Hope the news that all are in agreement that this surgery is the best course for Sophie allows you to sleep a little easier.<br /><br />Hang in there guys!!<br /><br />Love,<br />BarbAnonymousnoreply@blogger.com