tag:blogger.com,1999:blog-29367137.post3892736894312472347..comments2023-10-09T05:02:54.951-05:00Comments on Our Sweet Sophie: Neuro appointment...Sophie's Story by Elainehttp://www.blogger.com/profile/00415731740298071423noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-29367137.post-69071686851793099762008-06-13T21:38:00.000-05:002008-06-13T21:38:00.000-05:00I'm guessing you spoke with Dr. Chugani in Detroit...I'm guessing you spoke with Dr. Chugani in Detroit? I've heard good things about him and that he's very willing to talk to any IS parents that might have questions. I know what you're saying about the more meds they fail, the less likely they are to get seizure free on the next one. We've heard the same thing from our neuro. But the thing is...some kids have to try upwards of 15meds...but EVENTUALLY something works. I'm not willing to give up and I don't think you should either. I'm so impressed at how well Sophie is doing inspite of all of the seizures...she's somehow managing to beat the odds! Take care and Sophie (and your family) are in my prayers!!<BR/>TeraReagan Leighhttps://www.blogger.com/profile/10276933188608521229noreply@blogger.comtag:blogger.com,1999:blog-29367137.post-11093029413350416942008-06-13T14:24:00.000-05:002008-06-13T14:24:00.000-05:00Hope this round of ACTH offers her even more relie...Hope this round of ACTH offers her even more relief than the last one. See all of you soon. Her cousins from KC are really anxious to see her and her sister.<BR/><BR/>Love,<BR/><BR/>BarbAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-29367137.post-58513388509961248602008-06-13T09:15:00.000-05:002008-06-13T09:15:00.000-05:00wow...you must be exhausted! Neuro appts are emoti...wow...you must be exhausted! Neuro appts are emotionally exhausting enough...without all the other things added in. <BR/><BR/>Finding a neurologist is hard. I'm sorry that your's sounds like a jerk...but glad that he's willing to work with you. And on the other side...how awesome that you got a call from the other neuro! <BR/><BR/>I'll be praying alongside you for Sophie. When do you start? <BR/><BR/>(((hugs))) <BR/><BR/>...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.com