tag:blogger.com,1999:blog-29367137.post115276799630306471..comments2023-10-09T05:02:54.951-05:00Comments on Our Sweet Sophie: Sophie's Story by Elainehttp://www.blogger.com/profile/00415731740298071423noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-29367137.post-1153144448427856432006-07-17T08:54:00.000-05:002006-07-17T08:54:00.000-05:00Elaine, Sophie has improved so much with ACTH. She...Elaine, Sophie has improved so much with ACTH. She is now bigger and stronger, and definitely will cope better with the new drug. Hang in there! Please remember that we are all here for you...<BR/><BR/>Vivian LiuAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-29367137.post-1153089870181797032006-07-16T17:44:00.000-05:002006-07-16T17:44:00.000-05:00Hello,Jason sent us the link and I just read all t...Hello,<BR/>Jason sent us the link and I just read all the posts and the beautiful pictures of all of you. Sophie is so sweet and Haley is getting so big. With so much love and support Sophie has nothing but the best in front of her. We are thinking of you and want nothing but good things for all of you. <BR/>Love to you all!Carrie Shttps://www.blogger.com/profile/15506425037360637500noreply@blogger.comtag:blogger.com,1999:blog-29367137.post-1152915772934396352006-07-14T17:22:00.000-05:002006-07-14T17:22:00.000-05:00Damn she is cute!!!!!!Damn she is cute!!!!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-29367137.post-1152794990506142452006-07-13T07:49:00.000-05:002006-07-13T07:49:00.000-05:00Oh, Elaine, I can feel your disappointment! It is...Oh, Elaine, I can feel your disappointment! It is a blow that she has to start a new drug. The unknown is always so scarey!!!<BR/><BR/>She tolerated the ACTH so very well and now that she's coming off it she just shines. I'm sure you're more than concerned that the Topamax will slow her down some, but she just might tolerate it as well as she did the ACTH. The possible side effects of these drugs are just that...POSSIBLE... and even when one does experience some of the side effects they often decrease once a person adjusts to the drug. I'm praying this might be the magic bullet to ease those seizures back while her body works on getting them resolved altogether.<BR/><BR/>All of her cheerleaders here are sending you our prayers and I know her "Guardian Angel Entourage" (led by Grandpa Charlie)are with her 24/7. We're all behind you and we're just going to send positive thoughts... the "Entourage" can flap their wings... and hopefully blow away some of the dust created by the Topamax so you can see there is still that light at the end of the tunnell. It's just going to take longer to get there than any of us thought!!<BR/><BR/>Hang in there, Sophie, and enjoy your new found mobility. <BR/><BR/>Love and Kisses,<BR/>Aunt BarbAnonymousnoreply@blogger.com